this post was submitted on 10 Nov 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] ShareMySims@sh.itjust.works 22 points 1 week ago (2 children)

Worst thing is, it isn't only influencers and other grifters who use this line of thinking, plenty of doctors and other medical professionals try to brush you off with "it's all in your head/psychosomatic" so they don't have to bother with you and can deny you support, but even if it is my brain playing tricks on itself, I'm still in fucking pain and need help, like wtf?

I have much to say on the subject but not the energy to get it out of my head and in to writing in a way that makes enough sense, so I'll leave it at that for today..

[–] FundMECFSResearch@lemmy.blahaj.zone 11 points 1 week ago (1 children)

I totally get what you mean.

Historically pretty much any illness medicine haden’t figured out the biological underpinnings was blamed on “it’s all in the mind”.

[–] ShareMySims@sh.itjust.works 7 points 1 week ago

They used to call us hysterical and lock us up, and now they expect us to be grateful for the "progress" they've made which is basically to relieve themselves of as much caring and effort as they can.. 🙄