this post was submitted on 10 Nov 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] TrueStoryBob@lemmy.world 115 points 1 week ago (4 children)

A buddy of mine was injured by an IED in Afghanistan, he lost his right eye. Every year he goes to the VA for his regular checkup and the doctor has to sign some paperwork that he then needs to get notarized. Social Security says they need all that to make sure he's still disabled... you know, checking that he hasn't spontaneously regrown an eyeball miraculously and would then be cheating the system I guess. Our benefit system for disabled people is really fucking broken.

[–] TexasDrunk@lemmy.world 33 points 1 week ago

My buddy's leg is like that for the same reason and goes through the exact same process. Still no leg.

[–] jimmycrackcrack@lemmy.world 9 points 1 week ago (1 children)

The cost of this and thousands of other pointless assessments by qualified medical professionals probably costs more than people receive in benefits in the first place let alone the cost of a handful of cases of actual fraud.

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[–] Evil_Shrubbery@lemm.ee 7 points 1 week ago* (last edited 1 week ago) (1 children)

Ok, but these have to be artificial hurdles - a yearly notarized doctors note?

[–] captainlezbian@lemmy.world 13 points 1 week ago (1 children)

Yeah, if it wasn’t artificial there would be a system to register a disability as impossible to recover from for stuff like loss of body parts.

[–] TrueStoryBob@lemmy.world 6 points 1 week ago

If he forgets his appointment or can't otherwise make it, it can take weeks if not months for a VA doc to see him and, in the meantime, he could lose his benies for like 6 months.

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[–] Glitch@lemmy.dbzer0.com 103 points 1 week ago (1 children)

Buddy of mine has no eyes. Has to get reevaluated every year. Still doesn't have eyes. Probably won't next year, let's check just to be sure

[–] Evil_Shrubbery@lemm.ee 27 points 1 week ago

There sure must be lots of people faking having no eyes.

/s

[–] disguy_ovahea@lemmy.world 60 points 1 week ago (1 children)

I was turned down with genitofemoral neuropathy because the government insists on record of ongoing treatment. The only continuous treatment for nerve damage is pain management, and I can’t take opiates.

I’ve paid into Social Security for 25 years, yet I can’t access my own money when I’m in desperate need of it. Fuck this system.

[–] hobovision@lemm.ee 10 points 1 week ago (1 children)

This sounds silly, but could you fill your opiate prescription and just toss the pills? Maybe you can find a doctor willing to record your ongoing treatment as whatever works for you.

[–] disguy_ovahea@lemmy.world 6 points 1 week ago

The disability attorneys I’ve spoken with say it’s a double-edged sword. The government is also reluctant to support indefinite opiate treatment (with good reason). They said I’d have better luck applying for SSI citing the psychological effects from the pain rather than applying for SSD for the disability itself.

[–] Mk23simp@lemmy.blahaj.zone 52 points 1 week ago (1 children)

I would go further, especially considering the context:

Give people a survivable wage.

Regardless of whether they can work or not. People's survival should not be contingent on working. Give people what they need to survive as a baseline, and then if they want to work for more, they can negotiate for employment on equal terms.

[–] Starbuncle@lemmy.ca 25 points 1 week ago (7 children)

Even if a universal basic income makes things more expensive, it will make things more expensive by less than the amount that average people will benefit from it. It also reduces economic inequality.

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[–] Hupf 44 points 1 week ago (1 children)

So if she doesn't attend she gets denied for missing appointments and if she does, she's obviously not disabled enough, right?

[–] DarkDarkHouse@lemmy.sdf.org 19 points 1 week ago
[–] princessnorah@lemmy.blahaj.zone 38 points 1 week ago
[–] rational_lib@lemmy.world 33 points 1 week ago (1 children)

All these government benefits programs are ready to deny 100 valid people benefits if it means they stop one instance of fraud. Because only the one instance of fraud gets attention in the corporate media.

[–] TankovayaDiviziya@lemmy.world 12 points 1 week ago (2 children)

All these government benefits programs are ready to deny 100 valid people benefits if it means they stop one instance of fraud.

That's my criticism of conservatives obsessing and crusading over welfare fraud. Sure, fraud happens, what system is fool proof? But conservatives make it as though it is prevalent when statistics show that it's not (I don't know about the US but in UK welfare fraud is statistically not a big of an issue as it is made out to be). I met a guy who is nice and intelligent, and a conservative based from the views he espoused during the conversation, but he obsess over welfare fraud like many conservatives. Just because he personally saw few instances of fraud, he makes it as though it is a pervasive issue.

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[–] Luffy879@lemmy.ml 23 points 1 week ago (1 children)

Well, if you cant work you are a shame (and a traitor) for the Working class as Serving the rich would normally be your one and only job. /s

[–] Zetta@mander.xyz 12 points 1 week ago (3 children)

With our new presidential elect, we might not need to pay them benefits anymore. He could just get rid of them! /s

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[–] shadowedcross@sh.itjust.works 23 points 1 week ago (2 children)

I can confirm that it's a fucking terrible process and that they'll use anything they can against you.

[–] themeatbridge@lemmy.world 14 points 1 week ago (1 children)

Just a reminder, we spend more preventing welfare fraud than we save by preventing fraud. We could just give cash away on the honor system to everyone who asks for it, and we would save money.

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[–] Sam_Bass@lemmy.world 22 points 1 week ago (1 children)

suicide rate of applicants is pretty high already. incoming administration will only increase it

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[–] Dasus@lemmy.world 14 points 1 week ago

Putting Dole Up To £1K A Week | Kevin Bridges: A Whole Different Story

That takes balls. That takes balls, George Osborne, Ian Duncan Smith... looking through disabled people's doors: "This is your fucking fault, mate, you. We could go after tax-avoiding multinationals. We could go after Vodafone, Starbucks, Amazon, Google, Gary Barlow, but it is your fucking fault. You."

"You're going back to work, mate. We don't give a fuck how disabled you are. Oh, you're paralysed from the neck down. We don't give a fuck, mate. There will be a farm out there looking for a scarecrow. Fucking go to the farm."

[–] PugJesus@lemmy.world 8 points 1 week ago

Give disabled people who are unable to work a survivable wage

Hilarious. Ha ha ha. As if.

Society was already hostile towards the disabled. Just wait to see how much worse it's going to get.

I'm not looking forward to it.

[–] captainlezbian@lemmy.world 6 points 1 week ago

51% seems low

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