this post was submitted on 10 Nov 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] PennyRoyal@sh.itjust.works -1 points 2 weeks ago (1 children)

It’s terribly worded, but unfortunately it’s kinda true. I have a good friend who got severe nerve damage falling while doing arb work, wrenched his shoulder. Basically, one of his major nerves was constantly firing. He was on tons of anti inflammatories and morphine, until they gave him a therapy that slowly taught his brain to ignore the signal from that one nerve. It took a long time, but he’s completely pain free now.

[–] FundMECFSResearch@lemmy.blahaj.zone 9 points 2 weeks ago (1 children)

CBT for pain does not make the pain go away. It helps you cope and perceive the pain as less, that’s completely different than the pain going away, the science is clear on this.

The pain is still there and the same amount, you just have coping mechanisms to better deal with it and focus on it less.

Thinking the pain away is complete pseudoscience.

[–] PennyRoyal@sh.itjust.works 2 points 1 week ago

It’s not Cognitive Behavioural Therapy that he had, it’s a specific technique for nerve pain. It wouldn’t work on an injury, but as his problem was basically just one nerve transmitting the message long after the physical damage had healed, he had a long course of a physical therapy that teaches the body to go through the range of motion of the afflicted part without noticing the message from that one nerve.