this post was submitted on 21 Dec 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

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A woman from Canada with severe ME has been approved for MAiD - but she wants to live (www.thecanary.co)
submitted 15 hours ago by FundMECFSResearch@lemmy.blahaj.zone to c/chronicillness@lemmy.world
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[–] Terces@lemmy.world 37 points 13 hours ago

People really didn't read the article. The government broadened the availability of MAiD an now this woman (or rather her condition) qualifies for it. That is actually good.

What's bad is that the general healthcare for people with her condition is terrible. This might make some people afflicted with the same disease choose death just because they cannot seek better treatment.

[–] Borger@lemmy.blahaj.zone 10 points 12 hours ago

“25% of people have severe ME.” WTF? I’m guessing they meant 25% of ME diagnoses are severe?

[–] breakingcups@lemmy.world 9 points 14 hours ago (4 children)

Why would she be approved for that 8f she wasn't seeking it? I don't understand.

[–] mcteazy@sh.itjust.works 21 points 12 hours ago (1 children)

This is not a neutral informative piece, it's trying to push a narrative and build support for an agenda. Part of that is how this particular point is phrased. Her condition is eligible for MAID, since she doesn't want MAID and hasn't applied for it, she hasn't been approved.

[–] Thrillhouse@lemmy.world 4 points 11 hours ago

I’m having trouble parsing that actually - it sounds like she’s applied for it and has been approved for it, but would not like to resort to that option.

The conditions accepted for MAiD have broadened but to actually be “approved” for the procedure you have to apply for it. The article says “… comes amid her being approved” not “her condition being eligible”

After decades battling severe ME/CFS and systemic lack of support, Marcia Doherty – known online as “Madeline” – is going fully public in a desperate bid to secure her survival and fight for change. It comes amid her being approved for assisted suicide in Canada – something she doesn’t actually want at all.

I agree with you that this is a persuasive piece which leverages MAiD as a call to action to better care for people with this condition.

[–] Thrillhouse@lemmy.world 9 points 12 hours ago (1 children)

It is a cry for help to demonstrate how bad the condition is and the lack of support for it.

As per the article, this lack of support exists worldwide.

The way MAiD works in Canada, she has been approved but she is not forced to go through with it. It is now an option on the table for her if everything else becomes too much.

[–] tpihkal@lemmy.world -3 points 11 hours ago (1 children)

😃 "And! Just so you know, dear...you've been APPROVED for MAiD! Only if you want to go there though." 😔

[–] Thrillhouse@lemmy.world 4 points 11 hours ago

Yes because she requested it?

I requested ADHD medication and was approved for that. If I don’t want to take it or if I want to stop taking it that’s my choice.

This is kind of how healthcare works so I don’t understand the sarcasm.

I think her approval for MAiD also boosts the visibility of her disease and how, again, all countries (not just Canada) care for people with this condition (spoiler: they don’t).

Telling this story in the media is a last ditch effort to get adequate care. Otherwise, she doesn’t want to live like this. Sounds reasonable.

Other countries like the US would probably just prefer she die homeless, poor, and quietly in the street somewhere, while still denying her care for her condition.

[–] FundMECFSResearch@lemmy.blahaj.zone 2 points 14 hours ago

Because her other choice is to die of starvation.

[–] tpihkal@lemmy.world -4 points 14 hours ago (2 children)

This isn't an isolated incident. Some badies out there would love to save tax dollars with their dystopian nightmare.

[–] Thrillhouse@lemmy.world 2 points 12 hours ago

They should investigate. Particularly because a healthcare professional offering MAiD or even broaching the subject of MAiD with their patient is not permitted within the existing protocols and practices as I understand it.

If someone wants to seek MAiD they need to raise the topic with their healthcare team - not the other way around.

[–] Albbi@lemmy.ca 0 points 10 hours ago* (last edited 10 hours ago)

Looks like what you linked was an isolated incident.

Through its comprehensive investigation, the Department has confirmed the four cases isolated to a single employee who is no longer with the Department.

https://www.veterans.gc.ca/en/about-vac/reports-policies-and-legislation/departmental-reports/report-allegations-inappropriate-conversations-veterans-about-medical-assistance-dying-maid/conclusion

And like others have said, being eligible doesn't mean being forced to use the program.

[–] conciselyverbose@sh.itjust.works 5 points 14 hours ago* (last edited 14 hours ago)

It's not assisted suicide if they don't freely choose death.

That's murder.