this post was submitted on 23 Jul 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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How the hell am I supposed to live? This isn't even enough to cover rent in my area. I have a move-out date of August 31st and I have no clue what we're going to do.

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[–] ____@infosec.pub 4 points 4 months ago

I've never known anyone who actually received a livable amount of money via SSDI.

I have seen some screwy situations as a result, there just isn't enough money involved for one person (much less 'and child') to survive.

As others have suggested, there's the vanlife route, but that's dependent on being able to maintain said vehicle, pay for camping and gas, and cover the other relevant expenses such as insurance.

I've seen people share residences, make use of temporary accommodations, get subsidized housing, and a variety of other things. None of those are necessarily quick fixes, unfortunately.

To my knowledge, there is not a single location in the continental US where that would be sufficient money to live on. I'm genuinely sorry, though glad you got approved.

There are parts of the country where your back pay could go towards purchasing a home, land, a trailer, and/or similar. Trailer parks charge lot rent, property taxes cost money, and then there are maintenance costs as well so that may or may not be viable for you.

Here in east-central IL, one might well be able to purchase a trailer already on a lot, and pay the lot rent and have enough to live on given back pay. Other parts of the country, YMMV. On the other hand, in addition to maintenance and utility costs, you're also on the hook if the park has issues and/or the company/group running the park has issues - as well as potentially for collective expenses such as sewage infrastructure maintenance. Not to discourage this line of thought, just to point out that there are potentially significant expenses involved in the future, just like with any ownership interest in any home.