this post was submitted on 09 Nov 2024
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[–] LiveLM@lemmy.zip 26 points 1 week ago* (last edited 1 week ago) (1 children)

So I looked up the account on the screenshot and fell into a huge rabbit hole.
The TL;DR is that the poster has a rare syndrome that makes it so his body simply doesn't have energy to perform most tasks, and it progressed to a point where merely interacting with other people causes his brain to use too much "energy" and makes him crash.

My TL;DR is a gross oversimplification of his story and doesn't do it any justice. When you have the time, please read what he has to say, it's eye opening: My Story by Whitney Dafoe

[–] FundMECFSResearch@lemmy.blahaj.zone 12 points 1 week ago* (last edited 1 week ago) (1 children)

Thanks for sharing. I have ME/CFS too.

It’s not even that rare over 2 million people in the US have it, just quite a marginalised illness, mostly because it majoritarily affects women and was therefore blamed on “hysteria” till the 80s. A lot of the medical system still has prejudicicial views towards it.

A decent chunk of the more severe Long COVID cases fit ME diagnosis criteria, which makes sense, because most ME cases have historically been caused by viral infections.

[–] LiveLM@lemmy.zip 6 points 1 week ago (1 children)

you too. Really appreciate you looking into it. Most people just don’t care, so it really makes me feel seen, thank you.