Chronic Illness

215 readers

180 users here now

A community for chronically ill people.

Rules

Be excellent to each other
Absolutely no ableism, although good faith questions that take an ableist stance will be left up pending moderator discretion.
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

founded 3 months ago

MODERATORS

mecfs@lemmy.world

graphito@sopuli.xyz

FundMECFSResearch@lemmy.blahaj.zone

I finally have a job where my bosses and coworkers understand what chronic illness is (lemmy.world)

submitted 4 weeks ago by LaunchesKayaks@lemmy.world to c/chronicillness@lemmy.world

4 comments fedilink hide all child comments

I've been chronically ill my whole life. My job was very accommodating while I searched for actual answers. This is the first job I've had where I can actually take time to care for myself without getting in trouble.

Anyway, I finally got an answer to what my illness is after desperately searching for 20 years. I have lupus, specifically SLE. I always suspected it, but rheumatologists never took me seriously until now. I have to make a 2 hour trip, one way, to see my doctor, but it's worth it.

I sat down with my boss after getting my diagnosis and discussed how the disease could potentially impact my life and working ability. I discussed every important aspect of it so my boss and I are on the same page. He was so supportive and kind and I cried because it is so amazing to be supported like that in the workplace.

I truly hope the rest of you can find/have an employer like mine.

you are viewing a single comment's thread
view the rest of the comments

[–] LaunchesKayaks@lemmy.world 6 points 4 weeks ago

Thank you!