this post was submitted on 30 Jul 2024
808 points (98.1% liked)

Chronic Illness

245 readers
18 users here now

A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago
MODERATORS
 

discharge = discharge from hospital

you are viewing a single comment's thread
view the rest of the comments
[–] ZILtoid1991@lemmy.world 16 points 3 months ago (2 children)

I have so serious side effects from my anti-seizure medication it literally disables me more than my seizures (note that I rarely had seizures, it was just too scary for my parents), but every complaint of mine was just dismissed.

  • Trouble with sleeping? Just sleep more, you will have more dreams and more health since more sleep means more health.
  • Trouble with memory and concentration? Either just try harder, or take notes about every small detail.
  • Weight gain even with a diet? Give up all your other hobbies and become a full-time sportsman!
[–] YtA4QCam2A9j7EfTgHrH@infosec.pub 9 points 3 months ago

I’m so sorry everyone is so invalidated.

[–] coffeejoe@lemmy.dbzer0.com 2 points 3 months ago (1 children)
[–] ZILtoid1991@lemmy.world 3 points 3 months ago

Valproic acid. It's so infamous as a mood stabilizer that Scientologists were using it as their example of "bad medications", but once toxic positivity around mental health care became fashionable, people were forced to wipe the internet on documenting their misfortunes with the medication.