SpezCanLigmaBalls

I’m hoping this muscle biopsy will give me some answers. The emg I had showed muscle and nerve not working correctly in my thigh we haven’t found anything that can tell us why and what damage was done during my period of acute inflammation. Hopefully this can give us a hint as to what’s up.

When I woke up from the anesthesia I came to and I was fist bumping every nurse in the room 😂 They said I won the award for the funniest wake up of the week. For some reason I told a nurse that had nothing to do with my case that I loved her while she was leaving lmao

About 2 months ago was when I got my blood patch after my lumbar puncture a week and a half prior.

For a week after my BP I had bad nerve pain in my legs. I was on prednisone for a week after and it helped it subside until now.

So about 2 months after the blood patch my nerve pain in my legs has come back. It took a month and a half after my blood patch for my csf leak symptoms to finally go away.

It’s like I just can’t win. The nerve pain in my legs has come back with a vengeance. It’s the worst when I’m laying down. It’s like someone is trying to rip off my legs from my the soles of my feet to my low back. It’s like a bad stinging pain that you just want to stop because it’s so uncomfortable. Not only that, but it’ll feel like bugs are crawling all over my legs.

It started off small but then has got worse every single day to where I can’t even sit comfortably anymore without nerve pain. Only been a week since it came back and it’s hit hard. My lower back where I got my blood patch has also gotten sensitive and hurts.

Not only that, but just a few days ago I started to get headaches again while standing up. I was like ahh this has to just be a coincidence no way I’m leaking again. Well, it hasn’t stopped. I am also getting nauseas.

Nerve pain is the absolute worst because you know it can grow to absolutely ruin your life and there’s no stopping point for it. I don’t know what to do anymore. I’m obviously going to talk to my doctors but like Jesus Christ. I can’t deal with damage from my lumbar puncture and blood patch.

What I don’t understand is that gabapentin doesn’t help this nerve pain at all, but my Hydrocodone does. Gabapentin helps my other nerve pain but does zip for this. I don’t know why Hydrocodone would help this situation. Ahhhhhhh I just want to scream it’s never ending

I believe my chronic pain is all from TMJ and bad posture. When I do exercises to fix my posture I get pain from my TMJ down to really tight pelvis and thighs. So everything in between also. I’ve been stuck trying to figure out what to do to help myself. And of course, my spinal tap came back clean and yet I’m still dealing with complications from it.

I’m going to a physical therapy session with someone who does posture restoration and I’m really hoping it can help. I’ve found tests they do on YouTube to figure out what exercises are best for you and I struggle with all of them that I’ve found meaning my body is doing exactly what it would be doing due to bad posture and pelvis alignment issues.

It gives me hope that maybe I can start activating the muscles that aren’t working and hopefully in turn start to feel better. Everything I’ve seen on YouTube about them is exactly what I’m feeling. They keep in mind dental/jaw issues with all of this.

I know it’s a low chance someone here has heard of this or has chronic pain due to TMJ and posture issues but I’m curious

So I posted here after I got my spinal tap a few weeks back and I really wish I never got it. All it has done is cause more issues.

I had a bunch of hip and pelvis pain after it but I’m not gonna focus on that for this. My spine ended up not healing itself so for a week and a half before the blood patch I was experiencing the worst headache that I knew could actually exist, draining sinuses, eye pain, shoulder pain, more nerve pain into my shoulders and arms, and this raw indescribable pain in the back of my neck and between my shoulders that felt like my spine was being crushed. I was so uncomfortable. Having spinal fluid leaking makes your entire body feel so completely abnormal and wrong. I don’t how else I could describe it. The only good that came out of it was that I was sent to the hospital for an emergency mri by my neurologist due to symptoms of a hematoma. That’s not the good part, I had to spend the night so the next day I talked to a lot of people and I was talking to this woman there and she really wants me to see a neurologist at that hospital so I was able to get a referral to see them from my paint mgt doc. My current neurologist is currently moving to a new clinic but its too far away from me.

So I got a blood patch just over a week ago and that came with it’s own issues. Before the dude started he told me that if I feel any nerve pain in my hips or legs to tell him because it can cause permanent damage. I felt it, bad. We had to let the blood settle 2 times because it came on so I told him. As he was pushing the blood in I could feel the pressure build up in my spine so I could feel how fast he was going. After we waited the second time I gave him the go ahead. I honestly think he messed up and pushed too fast because all of a sudden I felt a ton of pressure build up and then the nerve pain hit me like a ton of bricks. It was so bad. For 3 days straight I had non stop nerve pain. The only wait I can describe it is as if some is constantly pulling on your leg really hard and stretching your nerves.

It has calmed down since then but it’s not gone. If I make a wrong movement or just am up for too long my hips and legs down to the bottom of my feet will start hurting. Not only that but the blood patch didn’t even fully work. I’m a lot better off but my sinuses are still draining a bit, I still get a headache from being up, eye pain, shoulder pain, still worse nerve pain in chest shoulders and arms, and between the shoulder and back of the neck spine pain is still there constantly. Don’t get me wrong, it’s better, but it’s not gone. Not only that but around the area where I got the blood patch and spinal tap will start hurting if I move too much. All my muscles in my back are also extra tight.

This whole thing just caused so many issues it’s so frustrating. I really wish I never got it. It’s just so frustrating because such a “simple” procedure has caused so many damn things to go wrong and I’m just straight up not having a good time.

The back of neck pain and between the shoulder blade pain is so incredibly annoying. Well actually all of it is but that part is what bothers me the most because holding my head up is just such a task. Not to mention I already have a bulging disc back there so I can only imagine less spinal fluid is only making it worse.

Editing this real quick to add something. So I get full body twitches since my issues started but only when I relax. For example when I’m in bed my arm, hip, legs, etc. will twitch. It’s a big twitch too, not a small one. It can move my entire body. Here’s the odd part that I have no idea what it means, before my blood patch my body completely stopped twitching. I had 0 twitches for a week. As soon as I got the blood patch and got home and laid down my body started to twitch again. I have no idea what it means but it’s something I noticed

I noticed I’m mostly posting in here and would like to know how you all are doing.

I ended up being sent to the hospital by the place that did my spinal tap due to complications so it’s been hectic and very painful for me.

Very stressed and tired and just want to get back to baseline pain.

How’s your week been? What have you done this week that challenged you? Do you have anything you are worried about coming up? Having pain better or worse than usual?

I originally got the solo 2 in late 2019 and then got a dynavap M 2020. After that I realized I wanted to use a bong with my dyna so I got a BB9. I used those for a while and they did me great but ended up getting the Arizer EQ.

Since I got that about a year and a half ago I haven’t got anything new. I think I have all the necessities when it comes to my use. I feel like I am one of the lucky ones (or unlucky) who had not been clutched by it!

Has anyone had a lumbar puncture that can tell me their experience?

The procedure itself was fine and I had a slight headache after and this morning but mother of god save me my lower back, tailbone, and hip are in so much pain. I don’t cry from pain but I’m on the verge of it. Since this morning I’ve been laughing from the pain it’s so bad that’s the only reaction I can do. I’m laying down now but I’m still hurting so bad. Like I honestly cannot understand how or why I am in this much pain. The doctors didn’t even tell me about hip pain or that lower back pain would be bad. My hydros aren’t even covering the pain. They help but not enough. Granted I don’t want to go over my daily dose. Has anyone had a lumbar puncture and can tell me if they had really bad pain? My headache is gone but my lower back, tailbone, and hip pain is so insane. Like this has to be what it feels like to give birth (I’m a male). It feels like my hip bones are going to snap or something. I am miserable. Also getting cramps and spasms everywhere. My body is not happy

They better find the reason for my chronic pain from this procedure or I’m gonna be pissed I’m going through this

It was $1300🤡 I thought it would be my normal copay but nope. Haven’t hit my deductible so I just got hit with my first random huge medical bill.

My back aches that’s for sure but I just took my painkillers so hopefully that helps soon, laying in bed the rest of the day. They tested my blood for MS. I really hope something shows in here since we know my muscles and nerves in my leg are messed up.

I’m also nervous and scared for the results. My cat can tell because he’s been rubbing on me in bed like I’ve been gone for days.