MossMonger

joined 7 months ago
 

Quick background: I live in a house with my sibling and their parents. My sibling is not legally or biologically related to me, but they ARE my sibling. My sibling's parents are not my parents, but we are collectively a 'family,' in many senses of the word. I call my sibling's parents "the Elders of Plumley" as Plumley is the name of our house, they are the oldest members of our household, and they are sources of great wisdom. I myself am in my late teens (no longer in high school.) My sibling is in their mid teens (still in high school.) All of us in the household are various hues of neurodivergent. (I have ADHD and my autistic friends are all convinced that I'm also autistic; my sibling is a fellow ADHDer and may or may not be autistic; Elders are ADHD and ??? (cluster of traits that are definitely something but remain undiagnosed) respectively.

Main thing: So, I have this communication issue with my younger sibling. (They're in their mid teens, I'm a few years older than them.) Sometimes I'll be trying to tell them something, or ask a question, and they won't respond; if I say their name a few times, they get frustrated with me (or, they make a noise that sounds frustrated, I'll admit that I don't know exactly what all their noises mean.) This isn't as much of a problem for me as it is for their parents. The elders of plumley have trouble communicating with them, and it has been known to cause arguments/distress. My sibling responds to them in ways that are harder to decipher, and they tend to make more irritated noises. (Or maybe they just get interpreted as irritation more often. I'm not sure.)

My sibling has previously described processing/registering that someone is talking to them, but not feeling the need to respond. I've asked about how we could maybe work out a means of more regularly communicating the fact that they're listening and similar, but they kinda just shrugged at me and made a confused noise. And to be honest, I feel quite similarly about the whole thing too! So, I turn to you lovely internet folks. Do you have any strategies for this kind of thing? Are there things I should be doing on my end to make communication easier? Are there alternate ways of saying "I'm listening" that aren't just saying the words?

 

cross-posted from: https://beehaw.org/post/12450534

I'm trying to play Rain World with a friend, but steam remote play doesn't seem to be working. I've managed to play online with friends on other games, though I dont thing those would have been using Steam Remote Play. Whenever I right click my friend's steam name and click "invite to play" or whatever its called, it does nothing. I can invite him to watch me play, and watch him play, but the invite to play doesn't work. Clicking his invites also does nothing, regardless of whether the game is open or closed. I have played Rain World with my friend when I was still using windows, and I'm wondering if this is just a linux problem. Has anyone encountered the same problem? Does anyone know how to fix this?

 

I'm having a really specific problem trying to play a game with my friend on fedora linux, and the internet seems to hold no wisdom for me. Can I ask for tech support here, or on the gaming community? I'm used to reddit where posts get deleted for being off topic, and often asking in a specific community is also considered off topic, so I'm trying to NOT have my thing deleted so i can play rain world with my friend.

 

A while back I was in a business class, and I had this thought, that I really wish there was a way for me to log how many mental spoons* (how much mental energy) it takes to do a task. Something like a period tracker app, or a habit tracker, that could allow me to enter some data, and when it had enough it would be able to estimate how much energy a task would take, and how much energy I probably have on a given day, so that maybe I'd have an easier time managing my own energy. This idea developed into extending to physical spoons, as I've since developed chronic pain. It's not just that I suck at time management, although I do suck at that, it's that I have a hard time knowing how mentally or physically strenuous an activity will be for my mind/body, or how much energy I will have on a given day.

The hypothetical app would allow the user to input tasks, state how long they take, rate on a scale how strenuous the activity is both physically and mentally, or maybe have a number of custom scales. Like, for me it would be like, let's say i need to go get something from the pharmacy. I could input how long I need to get ready, how long the walk is, the fact that it involves bright lights in the store but it's usually pretty quiet, aside from cars on the way there and back. I could input that it involves talking to a cashier, which I hate doing but usually is only a few words. So I spend roughly 30 minutes on my feet, the task is low to medium Sensory Bad, has a small amount of Interacting With Humans, and takes a tiny bit of emotional energy due to the People Will Think I'm Stealing anxiety. Using this data and ideally previous data that the app has about my energy levels before and after other similar tasks, the app could then say "this will take 2 physical spoons, 1 sensory spoon, 1 mental spoon." So then I go to the pharmacy and when I get back, I note how tired I am, whether each of these aspects were worse/more draining than I thought, and whether the task involved more types of spoons than I thought, and it could adjust accordingly to future instances. There would have to be a means of quantifying everything, but I think this would help me as a Moss quite a lot. It would be even better if I could also input things like, how much i slept, spoons used the previous day, etc. so that the app could guess how many spoons i have on a given day. I think this would help me manage my energy levels better, both in reassuring me of what I am capable of and reminding me gently that I shouldn't overexert myself.

I looked into it briefly, and I haven't found many apps that specifically are made to help disabled people manage their energy levels like this. The closest I think is one called Flaredown, which is meant to help chronically ill folks track their symptoms and meds.

I was wondering if y'all had any thoughts on this? I know a small amount of java and C++ (I think, whatever tinkercad uses when you code virtual arduinos.) and while I would definitely need to learn a lot to make this happen, the logic of coding comes easily to me. My ADHD is likely to make it hard to follow through on this project, and it's pretty ambitious, but I still think it would be interesting to try and see how far I get. Do you folks think this is a good idea? Anything you'd like to see in an app like this? Any feedback or tips?

*For those who don't know, spoon theory is a framework for thinking about energy made by Christine Miserandino. It was originally used to describe her own Lupus, but has since been extended to a wide array of disabilities)