this post was submitted on 09 Nov 2024
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A DNA-testing firm appears to have ceased trading - without telling its customers what has happened to the highly sensitive data they shared with it.

Atlas Biomed, which has offices in London, offered to provide insights into people's genetic make up as well as their predisposition to certain illnesses.

However, users are no longer able to access their personalised reports online and the company has not responded to the BBC's requests for comment.

Customers of the firm describe the situation as "very alarming" and say they want answers about what has happened to their "most personal information".

The apparent disappearance of Atlas Biomed is a mystery - but it appears to have links with Russia.

Prof Carissa Veliz - author of Privacy is Power - points out that DNA is arguably the most valuable personal data you have. It is uniquely yours, you can’t change it, and it reveals your – and by extension, your family’s - biological strengths and weaknesses.

Biometric data is given special protection under the UK’s version of GDPR, the data protection law.

"When you give your data to a company you are completely at their mercy and you have to be able to trust them," Prof Veliz said.

"We shouldn’t have to wait until something happens."

top 22 comments
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[–] CosmoNova@lemmy.world 85 points 6 days ago

It's almost as if every single data expert and privacy advocate was right. How curious!

[–] Confused_Emus@lemmy.dbzer0.com 20 points 5 days ago

"most personal information"

And they just handed it over to some company.

[–] jdw@links.mayhem.academy 49 points 6 days ago (3 children)

We need a federated DNA service.

[–] catloaf@lemm.ee 30 points 6 days ago* (last edited 6 days ago) (3 children)

And how do you suggest we federate our DNA to each other?

[–] Entropywins@lemmy.world 42 points 6 days ago (1 children)
[–] popekingjoe@lemmy.world 15 points 5 days ago (1 children)

Just a series of big ol' orgies.

[–] pastermil@sh.itjust.works 14 points 5 days ago (2 children)

Just like what our founding fathers had envisioned.

[–] skulblaka@sh.itjust.works 4 points 5 days ago

I don't know about the rest of them, but Ben Franklin sure envisioned some orgies. Attended a few of 'em too.

[–] ivanafterall@lemmy.world 3 points 5 days ago (1 children)

They didn't call it the Constitutional Cumvention for nothing.

[–] DancingBear@midwest.social 9 points 5 days ago

Fondling fathers

[–] Flocklesscrow@lemm.ee 10 points 5 days ago
[–] jdw@links.mayhem.academy 2 points 5 days ago

Federated DNA data storage service. My bad.

[–] 9tr6gyp3@lemmy.world 16 points 6 days ago (1 children)
[–] 667@lemmy.radio 23 points 6 days ago (1 children)

With AI generated crypto rewards

It was 1,000% sold without authorization

[–] Eezyville@sh.itjust.works 25 points 5 days ago (1 children)

The plot of Gattaca is getting closer and closer to reality.

[–] Flocklesscrow@lemm.ee 11 points 5 days ago (1 children)

nervously sweeps eyelashes off keyboard

[–] ivanafterall@lemmy.world 4 points 5 days ago (1 children)

You're gonna want to get some tweezers and collect those bad boys one-by-one, to be safe.

[–] Corkyskog@sh.itjust.works 8 points 5 days ago

Or just get some pets. If they can somehow pick my eyelash out from the billions of cat and dog hairs, then I commend them for their effort.

[–] MonkderVierte@lemmy.ml 13 points 5 days ago* (last edited 5 days ago)
  1. Your browser has a "save" functionality, use it
  2. You can't trust companies with such data.