this post was submitted on 19 Jan 2024
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Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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This is a new place for people coming from r/cfs.

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom.

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Long Covid: Zürcher Forschungsteam findet Ursache der Symptome (www.20min.ch)
submitted 7 months ago by bjoern_tantau@swg-empire.de to c/cfs@feddit.de
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Roughly translated, the immune system keeps fighting. They found the proteins persisting in the blood of Long Covid patients. They lead to blood clots and other stuff. Most importantly this can be tested for.

Hopefully this is applicable to CFS/ME as well.

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[–] Senseless@feddit.de 0 points 7 months ago

I also hope that this can help cure Long Covid and CFS/ME. I don't know anyone personally but seeing Diana (PhysicsGirl) suffer isn't easy.

[–] Kornblumenratte@feddit.de 0 points 7 months ago* (last edited 7 months ago)

No, it won't – Long Covid and Post Covid are two distinct problems, which are mixed up even by professionals all the time.

Long Covid: severe, prolonged (several weeks) Covid disease that damages organs. The damage persists. It's long known that the damage is caused by blood clotting. The damage leeds to chronic multi organ insufficency which is detectable and (more or less) treatable by standard medical methods.

Post Covid: Usually mild Covid infection that heals normally within 2–3 weeks, then after ~ 6 weeks onset of fatigue and PEM without detectable organ damage. This seems to be classical ME/CFS – which itself is probably not a single pathophysiological entity.

So, sorry – this finding might lead eventually to a method to prevent severely ill Covid patients to develop Long Covid, it won't help with ME/CFS.