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‘Right to Repair for Your Body’: The Rise of DIY, Pirated Medicine (www.404media.co)

submitted 2 months ago by ArchRecord@lemm.ee to c/technology@lemmy.world

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Sharing because I found this very interesting.

The Four Thieves Vinegar Collective has a DIY design for a home lab you can set up to reproduce expensive medication for dirt cheap, producing medication like that used to cure Hepatitis C, along with software they developed that can be used to create chemical compounds out of common household materials.

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[–] Allero@lemmy.today 17 points 2 months ago (6 children)

I was first on the fence, but yeah, at the very least, it's a clear signal to big pharma, and I welcome that move. Also, if this will actually get safe, reliable, and controlled enough, I'd love to have some basic spare parts and make my meds at home. But that would probably require something more complex than Microlab.

Don't trust your life with this unless you have to. Curious project nonetheless!

[–] JovialMicrobial@lemm.ee 13 points 2 months ago* (last edited 2 months ago) (5 children)

This could be very good for people with orphan diseases(diseases that are rare enough that they aren't profitable for private companies to research)

Also, having an orphan disease often results in insurance companies denying coverage for everything because they don't have a policy written up for that specific disease.... so there's no script for the workers to follow. Then your doctor has to argue with them, which can take weeks, in the meantime you have no medication.

Yeah, I'm not mad or anything. I wish I could've cooked up my own meds when insurance denied me life giving meds because they'd never heard of my disorder.

[–] tehbilly@lemmy.dbzer0.com 8 points 2 months ago

Insurance is absolutely, unambiguously, the worst. I had a stress echocardiogram denied by insurance yesterday because they don't think I need it. A test to try to identify a problem, what's my alternative? Wait to see if I drop dead? I guess in that sense I don't need it but c'mon. And I'm on one of the "good" plans.

It seems like "deny everything and we'll save money on the people that can't/won't fight the denial" is actually common practice now.

I hope their actuaries get to experience the bullshit and have time to regret their contributions to human suffering.

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